Just Keep Swimming

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Matthew at 3 watching “Finding Nemo”

What do you do when you’ve done all that you can and your tubie needs a clean out anyway? All of the blending and adding and removing and…SO MUCH GREEN STUFF! Well… You just keep swimming, right? That’s what Dori did. Yes, finding Nemo is one of Matt’s favorite movies to this day even though He’s now 15. So amid the overwhelming feeling of defeat,exhaustion worry and fear I hear that song ringing in my head. Oh how I wish it were that easy. Matt has had GI troubles since he was 8 months old. I’ve been at this for 15 years. Shouldn’t I be use to the ups and downs of this tubie roller coaster by now?

But, as we all know, that is not the case. Putting up with the pain and discomfort or watching someone you love go through it is never easy.  So whether you are a tubie yourself or the caregiver of a tubie, a newbie tubie or a veteran tubie, please know that you are not alone. Find a support group if you are not in one already. They are indispensable! Where else can you go and talk about poop and vomit as if it were the weather. We get each other. No need to explain, defend or excuse. Just take a breath and…You guessed it! JUST KEEP SWIMMING!

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