Ever feel like this guy? I have and quite often lately. After developing The Poopinator I was sure Matt’s problems were over…and for a while they were. Slowly it stopped working. Before I knew it, Matt was back on Miralax and then some. Each additional medication and technique would work for a while then stop…
Category: Our Journey
Going deeper and moving forward.
Another PICC Line
Hands up. Eyes closed. Twisting at the waist as if the top half of him was actually a washing machine agitator. Sunday morning worship is extra special when Matt is with us. Sometimes I just watch others watching him and smile. Other times I think “If they only knew what it takes on a daily…
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Baby Steps
Yes, even veteran tubie moms can struggle from time to time. Matthew can’t handle large volumes because of his slow emptying issues. He is a growing teenage boy who is now more active than he’s ever been in his life. It has been quite a challenge getting him the additional calories he needs without increasing…
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I’m Back!
It’s been very busy here at the Barton home lately. Shortly after starting this blog we found out that Matthew needed major hip surgery. I was a bit overwhelmed by the news because the x-rays from the prior visit with the orthopedic surgeon looked great. On top of all the digestive tract problems, Matt also…
