The Comeback

Ever feel like this guy?  I have and quite often lately.  After developing The Poopinator I was sure Matt’s problems were over…and for a while they were.  Slowly it stopped working.  Before I knew it, Matt was back on Miralax and then some.  Each additional medication and technique would work for a while then stop…

Another Testimonial

I got a message from a dear friend today.  I say friend but she’s more of a sister to me.  So many times I have called on her for prayer and support.  So many times she has been there for me.  Being an amazing NICU nurse is a bonus.  I can only imagine how the…

Another PICC Line

Hands up.  Eyes closed.  Twisting at the waist as if the top half of him was actually a washing machine agitator.  Sunday morning worship is extra special when Matt is with us.  Sometimes I just watch others watching him and smile. Other times I think “If they only knew what it takes on a daily…

Coconut Milk/Pros and Cons

As Matthew grows it gets harder and harder to keep up with his calorie need without adding more formula.  To complicate things more, in the last 2 years, his bowel has begun functioning much less efficient.  Because of that I tested him for 4 days with coconut oil to make sure he wasn’t allergic to…

Baby Steps

Yes, even veteran tubie moms can struggle from time to time.  Matthew can’t handle large volumes because of his slow emptying issues. He is a growing teenage boy who is now more active than he’s ever been in his life. It has been quite a challenge getting him the additional calories he needs without increasing…

I’m Back!

It’s been very busy here at the Barton home lately.  Shortly after starting this blog we found out that Matthew needed major hip surgery.  I was a bit overwhelmed by the news because the x-rays from the prior visit with the orthopedic surgeon looked great.  On top of all the digestive tract problems, Matt also…