Tag Archives: Hirschsprung’s Disease

Transition Charts

The weight and bowel movement chart is vital for transitioning babies, toddlers and children because their bodies respond differently to food and formula differently. For Matthew, because of his Hirschsprung’s Disease diagnosis, he has slow motility. The chart has helped me track how well his current regimen is working. Some babies and toddlers will have difficulty maintaining their weight on a blended diet. That is because a lot of the calories in formula is sugar which is easily stored while whole foods tend to burn as more efficient fuel for the body so more food is necessary. An example would be how much easier it is to gain weight drinking milk shakes as apposed to a balanced diet. The other reason why this chart is vital is for bowel management. Put simply, what goes in must come out. How it comes out will tell how your child is handling certain foods. It will allow you to adjust fiber and water content as you go along. Without the chart it is a shot in the dark. It will be hard to track if your child is gaining, maintaining or losing weight on the new diet as well as what foods are causing constipation. In a nut shell, using this chart will help you see any changes from day to day and show the doctors a your transitioning progress.

I’m Back!

It’s been very busy here at the Barton home lately.  Shortly after starting this blog we found out that Matthew needed major hip surgery.  I was a bit overwhelmed by the news because the x-rays from the prior visit with the orthopedic surgeon looked great.  On top of all the digestive tract problems, Matt also suffers from bilateral hip displaysia.  That means that both of his hips dislocate.  Because of their loose ligaments, kids with Down Syndrome are prone to it.  We found out when he was 4 and he wore a brace for 8 years hoping it would correct the problem without surgery.

The brace did work on the right but his left hip continued to dislocate.  So, at the end of December, Matt had his surgery.  Unfortunately he was back in the hospital 1 week later with an infection in his hip because of his weak immune system.  Now after 3 months in 3 different casts

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Cast #1

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Cast #2

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Cast #3

and 2 months in a new brace, he is walking on his own without the help of the brace or walker!

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Walker and New Brace

Now if that weren’t enough, 3 months before the surgery, he began having major problems related to his Hirschsprung’s disease. In my next post, I will talk about what happened and share my green smoothie recipe that worked where Mira lax failed. Stay tuned!