Tag Archives: blenderized diet

Meet Raiden

Testimonials, , , , , , , , ,

Working with Raiden’s mom was an amazing experience. She was highly motivated which was crucial in taking on a blended diet for Raiden. A blenderized diet takes time and commitment and we were working together with 3000 mile and 2 time zones in between us. The fact that we both owned a Vitamix made it easier for me to create a blend for her and have her repeat it seamlessly step by step. My joy comes from seeing little ones with g-tubes grow and thrive on real food and helping other families experience the same success. So, without further ado, here’s Raiden’s story:

Raiden at 1 year

Brechae and Raiden’s Testimonial:

My son Raiden has been tube fed since he was 4 months old. He was fed breast milk fortified with formula for extra calories. As he got closer to a year old and my milk supply began to decrease I sought out his options for nutrition. I spoke to his G.I. and he wanted to put him on Pediatric Compleat. I’m the kind of person who does her research, especially with regard to my child, so I looked up the formula. Upon reading the ingredient list I quickly discovered that the product was mostly sugar. I didn’t want that for him. I remembered reading about a blended diet in a feeding tube group on Facebook. At the time I had no idea what it was but I wanted to learn more. I was directed to “Blenderized RN” group on Facebook and that is where I met Tina!

We bonded over both having tubie sons who also have Down syndrome. She helped/taught me to slowly start the transition from fortified breast milk to real food through his tube. Raiden doesn’t have dietary restrictions/sensitivities or G.I. issues. His aversion to food is mostly sensory so I was able to trial all kinds of baby food, baby cereal, eggs, whole milk, etc. with no problem. Once we learned what he tolerated, Tina created a breakfast blend just for Raiden (Raiden’s Breakfast Blend)! It had oatmeal, eggs, an apple and whole milk. It was my go to meal and gave me the confidence to create blends for him on my own with my Vitamix.

Initially he was fed via Infinity pump and could only handle small amounts at a time. I was worried it would always take hours and hours of him being connected to his feeding pump to get him to grow. Tina assured me that based on his medical history we would one day be able to bolus feed via syringe and that he would be able to handle more volume and she was right! When I started blending Raiden was 18lbs. Now he is 27 lbs! We are two years into our blenderized diet journey and I can honestly say that it has been one of the best decisions I’ve made for my son. Tina’s wisdom and guidance along the way has been such a blessing!

Raiden at 33 months

Fig Butter

Blenderized, Dairy Free, Dips and Spreads, Gluten Free, Pureed, , , , , , , , , , ,

Fig Butter

  • Servings: 16
  • Difficulty: easy
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Fig Butter (5)

This was an unexpected surprise!  I was originally trying to add more fiber to the Poopinator Plus because we are still waiting on a referral to UCLA Children’s Hospital for a more in depth motility.  I also thought it would help his weight loss issue due his currently very limited diet.  Sadly the fig gave him too much gas so I had to pull it out.  But, as always, I try all of his blends to make sure they taste good and this was amazing!  So far, with only 2 calorie dense ingredients an zero prep time this is by far the easiest, highest fiber calorie booster I have made to date.

Ingredients

-8oz Hemp Milk

-8oz Dried Adriatic Figs

Directions

  1. Place the ingredients to the 32oz  Vitamix container in the order listed and secure lid.
  2. Let sit for 20 minutes to soften the figs.
  3. Select Variable 1.
  4. Turn machine on and quickly increase speed to Variable 10, then to High.
  5. Blend until completely smooth (approximately 1-2 minutes), using the tamper to press the ingredients into the blades.

Food Tips:  This recipe packs 56.8 calories per 1 ounce serving.  That makes it a good calorie booster without added sugars and/or syrup.  Because it’s important for oral eaters, I always taste my recipes.  This tastes amazing on toast (as seen in the picture).  By itself it’s pretty sweet but added to other pureed dessert or snack recipes, I think it would tastes great.

Time tip:  Freeze this butter in ice cube trays then pop them out into freezer bags for easy storage and quick defrost.

Money Tip:  As with most of my ingredients, the figs and hemp seed are best purchased at a bulk food store  like Winco.  The prices are always much lower and you can by just what you need so there’s no waste.

Blend Cooler

Helpful Hints, , , , , ,

One of the objections health professionals have for not using home blended meals is food-born illnesses. Though they are justifiably concerned, it need not be a road block to good nutrition.  Individuals who must or choose to use a feeding pump don’t have to be excluded from enjoying the benefits of a whole food blenderized diet.  Where there is a will, there’s a way.

That being said, many of us may have some idea about what proper food storage is but not have the whole picture.  So I took a look at what the FDA had to say.  Even though it was a confirmation, it felt good to see it in writing.  When it comes to blends, I don’t keep them in the refrigerator for more than 48 hours.  That’s why I freeze in small portions.

Still not convinced?  Take this scenario, for instance.  You have to go to work or school and you choose to bring your lunch.  Do you get to your lunch break and toss your nutritious lunch in the trash?  No?  Why not?  Because it’s been in your lunch box with an ice pack all morning, you say?  Exactly!  We don’t think twice about for those that eat orally.  So, when I was faced with the same issues, here’s what I came up with:

 

  1. Find a lunch box that will fit your feeding bag.
  2. Cut a whole in the top of  it to thread the loop through so that you can hang it on the IV pole.
  3. Cut a whole in left side to allow the tube to exit and connect to the pump.
  4. Add Bag filled with the feeding and ice packs front and back.
  5. Zip up the lunch box and start you feed.

It is best to start with a cold blend if you can-by.  That way the food stays fresher longer.  Depending on how long the feeding runs, you may need to replace your ice packs.

If your pump came with a mini backpack,  you may use it but I had a hard time fitting ice packs in with the feeding bag.  If anyone reading this has figured it out, feel free to add your idea to my comment section.  If you need something more portable, you can get a regular backpack that has sections to hold the lunch box and the pump so the tubing doesn’t get kinked.  Nowadays they usually have an opening for headphone wire.  If not, adapt it yourself.

At first I was afraid to do this thinking the blend would upset Matt’s stomach because it was too cold.  Then I realized that, by the time the food got to the extension tube, it was room temperature.  Besides, we eat cold food all the time without even a thought.  He as not had any issues.  As with anything you do with your tubie, when you try something new, watch them closely.  Look for signs of discomfort and stop the feed if there are any.

I hope, pray and dream of the day when manufacturers of feeding pumps get on board with those of us who choose food over formula.

The Comeback

Our Journey, You are Not Alone, , ,

https://i0.wp.com/i.telegraph.co.uk/multimedia/archive/03423/chelseaplayers_3423607b.jpg

Ever feel like this guy?  I have and quite often lately.  After developing The Poopinator I was sure Matt’s problems were over…and for a while they were.  Slowly it stopped working.  Before I knew it, Matt was back on Miralax and then some.  Each additional medication and technique would work for a while then stop working.  At one point I told his GI doctor in exasperation, “I feel like I am doing CPR on his colon all day long!”  The terms appendicostomy and colostomy began to circulate and I became worried.  How could this be?  He’s super hydrated and has the cleanest most fiber filled diet of anyone I know. What am I doing wrong?  Answer:  Absolutely nothing.  Even the best blenderized diet can’t fix a mechanical problem.

Eventually he ended up back in the hospital for yet another clean out. I needed answers to questions that sometimes even doctors can’t answer.  My thoughts became filled with “What ifs?”. Further tests were done that showed he did not have a specific area that had stopped working but that he was slow over all.  So we left the hospital cleaned out and back to square 1.  If the current regimen fails then we will have to carefully consider what is best for Matt. Even though the test didn’t show something that was an easy fix,  I still feel better.  Knowing is way better than not knowing.  Now we can move forward to whatever the future holds for him.  And always, I pray and hope.  God had a plan for Matt’s life when He placed him in our family (Jeremiah 29:11).  My job is to make that life the filled with as much quality as I can.

So, since quitting is not an option, I will blend on while listening to my new anthem “The Comeback” by Danny Gokey.  Feeling defeated today?  Click, listen and be revived.

Hemp Milk

Blenderized, Dairy Free, Gluten Free, Milks, , , , , , , , , ,
  • Servings: 8
  • Difficulty: Very Easy
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Hemp milk is by far the easiest dairy milk substitute.  There is no cooking and, with the Vitamix, there is no need to run it through a filtration bag unless it is being given through a gastric tube.  It is very calorie dense with lots of protein.  It tastes great as is but I’ve added a couple of ingredients for folks who like their milk substitutes a little sweeter.

Ingredients

  • 4oz (114g) hemp hearts
  • 1 1/2 cups of water
  • 4 Organic Medjool dates-pitted (about 1-1.5oz)
  • 2 cups of water
  • 2 teaspoons of vanilla

Directions

  1. Place hemp hearts, dates and 1 1/2 cups of water into the Vitamix into the 32oz container and secure lid.
  2. Select Variable 1.
  3. Turn machine on and quickly increase speed to Variable 10, then to High.
  4. Blend for 30-40 seconds.
  5. Turn machine off and remove lid.
  6. Add the remaining 2 cups of water and the vanilla and secure lid.
  7. Select Variable 1.
  8. Turn machine on and blend for 10 seconds.

Strained Hemp Milk

Food Tips:

  • If you are buying pitted dates, it is a good idea to slice them lengthwise before putting them in the Vitamix container. This will ensure that no part of the pit was left inside during processing at the plant.  I have yet to find any literature that says they are dangerous but the pieces can clog g-tubes.  Even if a piece gets through it could cause problems in the GI tract of someone who already has difficulty processing solid food.
  • If you have time, soak the dates and hemp seed for 30 minutes before blending.  This reduces the amount of sediment and drastically reduces the need for straining or filtering. NOTE: IF THE MILK IS TO BE USED IN ANY TYPE OF GASTRIC TUBE, STRAINING OR FILTERING IS NECESSARY.
  • Store hemp seed in a mason jar.  It is easier to pour the seed into the Vitamix container than to scoop it out of a container with a spoon.  Also, store the seeds in the refrigerator.  Hemp seed is high in fat so they can go rancid quickly especially if you live in a hot/humid climate region.
  • One cup of fresh hemp seed milk has about  194 calories.  It has 10 grams of protein and 14 grams of fat so, unless you have a high caloric need, I suggest sticking to the 1/2 cup serving size.  Hemp milk will stay fresh in the refrigerator for 3-4 days.  Drink it straight or add it to smoothies.  It is also a great base for blenderized meals.
  • As with all “Super Foods” take the time to research and steer clear of the idea that “if less is good, more is better.”  This is very important if you are dealing with specialized or restricted diets, on medications or have various health conditions.

 

Time Tip:  Freeze any portion of the milk that will not be used in 3-4 days in ice cube trays.  Store the cubes in labeled and dated freezer bags for up to 6 months.  Since each cube is about an ounce, you can quickly grab what you need without wasting any.

 

Money tip:  Shop around before buying hemp hearts.  They can run as high as 12 dollars a pound in some stores and on line.  Winco has the lowest price at $7.02 a pound.  They can be found in the bulk food section for much less than the prepackaged bags.  It is good to alternate seed/nut milks.  If you are on a tight budget, alternate the types of nut/seed/bean milks you make to save money.  This is also important especially for individuals on blenderized diets to insure balanced nutrition.