Working with Raiden’s mom was an amazing experience. She was highly motivated which was crucial in taking on a blended diet for Raiden. A blenderized diet takes time and commitment and we were working together with 3000 mile and 2 time zones in between us. The fact that we both owned a Vitamix made it easier for me to create a blend for her and have her repeat it seamlessly step by step. My joy comes from seeing little ones with g-tubes grow and thrive on real food and helping other families experience the same success. So, without further ado, here’s Raiden’s story:
Brechae and Raiden’s Testimonial:
My son Raiden has been tube fed since he was 4 months old. He was fed breast milk fortified with formula for extra calories. As he got closer to a year old and my milk supply began to decrease I sought out his options for nutrition. I spoke to his G.I. and he wanted to put him on Pediatric Compleat. I’m the kind of person who does her research, especially with regard to my child, so I looked up the formula. Upon reading the ingredient list I quickly discovered that the product was mostly sugar. I didn’t want that for him. I remembered reading about a blended diet in a feeding tube group on Facebook. At the time I had no idea what it was but I wanted to learn more. I was directed to “Blenderized RN” group on Facebook and that is where I met Tina!
We bonded over both having tubie sons who also have Down syndrome. She helped/taught me to slowly start the transition from fortified breast milk to real food through his tube. Raiden doesn’t have dietary restrictions/sensitivities or G.I. issues. His aversion to food is mostly sensory so I was able to trial all kinds of baby food, baby cereal, eggs, whole milk, etc. with no problem. Once we learned what he tolerated, Tina created a breakfast blend just for Raiden (Raiden’s Breakfast Blend)! It had oatmeal, eggs, an apple and whole milk. It was my go to meal and gave me the confidence to create blends for him on my own with my Vitamix.
Initially he was fed via Infinity pump and could only handle small amounts at a time. I was worried it would always take hours and hours of him being connected to his feeding pump to get him to grow. Tina assured me that based on his medical history we would one day be able to bolus feed via syringe and that he would be able to handle more volume and she was right! When I started blending Raiden was 18lbs. Now he is 27 lbs! We are two years into our blenderized diet journey and I can honestly say that it has been one of the best decisions I’ve made for my son. Tina’s wisdom and guidance along the way has been such a blessing!
The Poopinator was lovingly named for it’s ability to move “mountains” (insert laughter)! I had reached the end of my rope, tied a knot and was hanging on for dear life when the knot unraveled. Matthew’s KUB showed that he was backed up again and the GI wanted me to do another “clean out”. Matthew does not suffer from constipation in the typical sense (hard stools). He suffers from slow transit constipation and lack of sensation so he can’t feel when he has to go and I wanted him off Miralax. We had done it before (more times than I care to remember) but this time was particularly bad. Needless to say I (and I’m sure Matthew) had had enough so I reached out to my Facebook group, “Blenderized RN” for help. I got lots of suggestions for foods that work as laxatives. I tried several individually but they didn’t work. So I put on my mad scientists lab coat and glasses and went to work. And so The Poopinator was born! No more Miralax!
1 once pureed celery
1 once pureed pumpkin
1 once pureed butternut squash
1 once pureed papaya
Combine all ingredients in a bowl or small jar and stir.
Using a 60cc syringe, draw up mixture making sure to expel any air bubbles.
Give bolus at a rate that is comfortable for your child. For example, Matthew does well if I give 20mls at a time and wait 5 minutes in between.
Finish with a water flush. Use whatever volume your child can handle. I use 15ccs because Matt can handle it.
If 1 once of each item is too much volume, you can cut them in half. You can also start with only 1 item and see how it works before adding another.For convenience I blend the ingredients separately, freeze them in ice cube trays and store them in labeled and dated freezer bags. That way you use exactly as much of each ingredient without wasting any. Because he gets his bolus in the afternoon, I take out the cubes I want in the morning, put them in a small mason jar and let them defrost in the refrigerator. Be sure to warm the jar slightly before giving the bolus so you don’t end up with an upset stomach. If this recipe doesn’t do the trick, try The Poopinator Plus.
Here are some other foods that can have a laxative effect: Prunes or prune juice, *fresh spinach, black strap molasses, peaches, pears,pineapple, orange, apricots, plums, blueberries, soaked raisins, flax seed and flax seed oil, hemp seed and hemp milk, Aloe juice and fresh Aloe Vera,coconut oil, dried dates, dried figs and sweet potatoes.
Since everyone’s system is different, some things may work too well (causing diarrhea) and some not at all. It can be frustrating but don’t give up. Try foods independently or, like I did, create your own cocktail. Like any good recipe, just remember to write it down so the items and amounts stay consistent.
*Be careful not to use too much fresh spinach. The iron in it can be counterproductive if not constipating.