Meet Raiden

Working with Raiden’s mom was an amazing experience. She was highly motivated which was crucial in taking on a blended diet for Raiden. A blenderized diet takes time and commitment and we were working together with 3000 mile and 2 time zones in between us. The fact that we both owned a Vitamix made it…

The Poopinator Plus

Matthew did very well on the Poopinator for a time.  Then slowly it stopped working and he began backing up again.  We had to put him back on Miralax, added Lactulose, Senna Plus, Enemeez and eventually the Peristeen pump.  Each addition brought some relief for a time but then stopped working.  He ended up back in…

Raiden’s Breakfast Blend

One of the most rewarding parts of being a tubie parent is being able to help others along on the journey.  Raiden’s mom and I connected through a group online and now I get to watch him thrive on…You guessed it.  Real food.  Just look at that smile!  I don’t know about you but I…

Another PICC Line

Hands up.  Eyes closed.  Twisting at the waist as if the top half of him was actually a washing machine agitator.  Sunday morning worship is extra special when Matt is with us.  Sometimes I just watch others watching him and smile. Other times I think “If they only knew what it takes on a daily…

Mooie!

Ok it’s been a while since I been able to add a new recipe so here goes.  I’m dedicating this to 2 young tubie warriors.  This ones for you, kiddos! Three years ago, right before Matt had his hip surgery, his digestive tract started giving him problems again.  I was trying to avoid putting him…

Baby Steps

Yes, even veteran tubie moms can struggle from time to time.  Matthew can’t handle large volumes because of his slow emptying issues. He is a growing teenage boy who is now more active than he’s ever been in his life. It has been quite a challenge getting him the additional calories he needs without increasing…

Matthew’s Green Smoothie

ATTENTION: Make sure to get clearance from your doctor before trying any blenderized diet. 1 cup of peppermint or chamomile tea 2 oz of Avocado 2 oz of fresh Aloe Vera (optional) 3 cups of greens Makes 2 cups 1. Place all ingredients into the Vitamix in the order listed and secure lid. 2. Select…