Matthew did very well on the Poopinator for a time. Then slowly it stopped working and he began backing up again. We had to put him back on Miralax, added Lactulose, Senna Plus, Enemeez and eventually the Peristeen pump. Each addition brought some relief for a time but then stopped working. He ended up back in the hospital for yet another clean out in October and to complete some much needed testing. After a Sitz Marker Study, we came to the conclusion that there was no specific areas of colonic inertia . His infectious Disease doctor highly suspects the backing up of his bowels was the cause of the g-tube stoma infection and the GI doctors are suggesting an Apendicostomy.
So here we are caught between a rock and a hard place. Matt eats most of his blends by mouth but gets meds, extra water, the Poopinator and an overnight feeding of green smoothie. Because of issues with his immune system, having an Appendicostomy done most likely would increase his chances of infection. On the other hand, after 16 years of major GI issues, I can’t see how I could maintain his nutrition and medication regimen without the g-tube.
So now I am on a mission. Delay or completely avoid another surgery. He has been drinking a blend throughout the day that contains hemp milk and it seem to bring him some relief. Then it came to me: Why not give him a straight shot of it with The Poopinator? It might have a better effect that way.
4oz of the original recipe or any combination of the foods listed in The Poopinator
Directions: Mix well. Warm the mixture and give as a bolus at the fastest rate that is tolerated. Flush with at least 10cc of water. If the volume is too high, reduce the solids before reducing the hemp milk until a tolerable volume is reached.
Please remember this: Medication and/or surgical intervention is not a failure on your part (somehow I think I’m talking to myself here). The goal is to do whatever it takes to give our loved one(s) the best quality of life possible. Blended whole foods is by far the best choice over formulas but sometimes it’s just not enough. Hang in there and don’t quit!
Ahh, papaya! I’ve come across two groups of people when it comes to this amazing fruit. Those that love it and those that are, well…let’s just say, not so fond of it. Whether you like it or not, it’s health benefits are impressive, to say the least, so finding a way of incorporating it into your diet is definitely a good idea. You will often find papaya in tropical frozen fruit blends. Blended in a smoothie is a tricky way of sneaking it in if you ave a struggle with the after taste. But that’s only 1 way. There are lot’s of recipes to suit anyone’s tastes.
Aside from being and excellent natural laxative, papaya has some some pretty impressive nutritional facts . One cup of raw papaya contains:
only 8 grams of sugar
3 grams of dietary fiber
144% RDI of vitamin C
31% RDI of vitamin A
13% RDI of Folate
10% (360mg) RDI of potassium
Papaya can also: Promote digestive health, work as an anti-inflammatory, boost the immune system and much much more.
Food Tip: When pureeing papaya, remove the skin. It adds no nutritional benefit, can be bitter to taste and can contain latex can cause allergic reactions. Also, for some reason, papaya goes from being a smooth, slippery, and easy to use in a bolus or pump feeding to this:
Yes I did that. No, it does not bolus well (threatens to clog) and will not blend into my food-based laxative cocktail. Chalk one up for experience. So, in the end, if you have not tried papaya…Go for it!
Yes, even veteran tubie moms can struggle from time to time. Matthew can’t handle large volumes because of his slow emptying issues. He is a growing teenage boy who is now more active than he’s ever been in his life. It has been quite a challenge getting him the additional calories he needs without increasing volume. Recently I had to add another carton of formula to his daily routing because his weight was dropping. I have been hesitant to try coconut oil and/or milk because of extreme food allergies in the family. For years I have been making his oatmeal with formula. Helping a transitioning little one has given me the courage to try adding 1/2 tsp of organic coconut oil in his immune system cocktail (given through the g-tube) to see how he reacts. It’s been 2 days and so far so good. If he continues to show no allergic reaction I will make his next batch with fresh coconut milk instead!